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In the grays case charlotte developed normally until she was about 2 and a half years old when she started showing signs of delayed speech and fine motor skills.
Charlotte gray batten png. Kristen both of your daughters charlotte and gwenyth gray have been diagnosed with batten disease a rare neurodegenerative disorder. Because so few suffer from this presently incurable and fatal disease there has been limited research focus and funding. Apr 27 2017 at 8 53 pm charlotte and gwenyth gray seen here in 2015 with their parents gordon and kristen gray have a rare disorder known as batten disease. The charlotte and gwenyth gray foundation in march of this year both of our daughters charlotte and gwenyth were diagnosed with late infantile ncl batten disease cln6.
In 2015 charlotte then age 4 and gwenyth then age 2 gray were diagnosed with batten disease. Doctors explained that there was no cure nor any treatment options for this rare neurodegenerative disorder which would leave the girls blind immobile cognitively impaired and ultimately gone between the ages of 6 and 12. There is no treatment options or cure and would leave your children blind immobile and cognitively impaired and ultimately gone between the ages of six and 12. 9 717 likes 6 talking about this 2 were here.
The charlotte and gwenyth gray foundation to cure batten disease. Meet a family whose two young daughters were born with a very rare brain disorder called batten disease. Curebatten los angeles california. Founded by two parents committed to finding a cure for batten disease to save the lives of their daughters the foundation recognizes firsthand the day to day challenges of living with a.
Learn the signs and symptoms of the devastating and incurable disease. Tell us more about this diagnosis. After a long journey of doctor appointments and second opinions she was diagnosed with batten disease in march 2015. The charlotte and gwenyth gray foundation exists to improve and save the lives of all children impacted by batten disease and other neurodegenerative disorders.
Doctors told the parents there was a 25 percent chance that their.
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Doctors told the parents there was a 25 percent chance that their. The charlotte and gwenyth gray foundation exists to improve and save the lives of all children impacted by batten disease and other neurodegenerative disorders. After a long journey of doctor appointments and second opinions she was diagnosed with batten disease in march 2015.
